Finding Answers
Finding Answers
By Mary Beth Palo
The population of children with developmental delays is growing at an epidemic rate.聽 Parents and teachers are facing many unknowns:
路聽聽聽聽聽聽聽聽 Is this child affected by a developmental delay?
路聽聽聽聽聽聽聽聽 If so, what is this delay?
路聽聽聽聽聽聽聽聽 How do we know what the problem is?聽 Where do we go to determine?
路聽聽聽聽聽聽聽聽 How extensively is he affected?
路聽聽聽聽聽聽聽聽 What do we do and how can we treat it?
路聽聽聽聽聽聽聽聽 How do we overcome the obstacles?
路聽聽聽聽聽聽聽聽 Why?聽
Answering these questions and taking a proactive stand can greatly affect the outcome of the child鈥檚 life.聽 Implementing appropriate educational and medical strategies to treat a developmental delay can be a means to fill the gaps left empty by a developmental delay.
The first and most important step is recognition of a problem.聽 If you are suspicious that something is not right, you are probably right and you should follow your instincts.聽 The first step to resolution is recognizing that a problem exists.聽 With a developmental delay, the earlier intervention is implemented, the more likely it is that treatment will be effective.聽 There is a window of opportunity to affect child development and it is crucial that you don鈥檛 allow that window to close just because of your doubts.聽 When in doubt, seek help, advice and opinions.
The first major signs of delay include:
路聽聽聽聽聽聽聽聽 Lack of language or delayed language
路聽聽聽聽聽聽聽聽 Impaired social skills
路聽聽聽聽聽聽聽聽 Impaired motor skills
路聽聽聽聽聽聽聽聽 Medical problems
路聽聽聽聽聽聽聽聽 Impaired immune system
The above is a list of very broad categories.聽 The severity of an impairment can fall anywhere within a very expansive range.聽 As an example, the diagnosis of autism is often referred to as ASD or Autism Spectrum Disorder.聽 A child diagnosed with ASD can be severely impaired with motor problems, lack of speech, absence of social skills while another child diagnosed with ASD may be diagnosed with aspergers; another form of ASD that is affiliated with significant social impairment.
What Can You Do?
1.聽 Determine if there is a delay or disorder.聽 Visit doctors or centers specializing in assessing developmental delays.聽 Options may include:聽 developmental pediatricians, neurologists, neuropsychologists, specialty centers for autism or developmental delays.
2.聽 Obtain a diagnosis.聽 Getting a diagnosis allows you to begin treatment.聽 Many parents are hesitant to 鈥渓abel鈥 their child as they fear the impact a label can create.聽 They are concerned their child will be treated differently by their peers, ostracized, or humiliated.聽 Therefore, obtaining a diagnosis is imperative in treating a disorder or delay.聽 The diagnosis will have a significant impact on the options available to your child.聽 It should be noted that state services and school services are usually only available to children with a diagnosis.聽 It is IMPERATIVE to obtain a diagnosis in order to obtain the services the child needs, deserves and is legally entitled to.聽
3.聽 Develop resource lists.聽 Start asking for available resources, recommendations, treatment information, centers, support groups and online resources.聽 Ask doctors, therapy providers, state education agencies, local and national organizations.聽 Begin researching services and treatment options on the internet.聽 Look for support groups and online chat groups and newsletters.聽 There is a wealth of information available online and the process of educating yourself begins with finding those resources and immersing yourself into them.聽 At first, this experience is quite overwhelming, but with time, you will become more comfortable and will sort out what is appropriate for your situation and what is not. Talking to others that have traveled this road will also give you comfort and confirm that you are moving in the right direction by looking for help.
4.聽 Research the condition.聽 Begin to research the condition, the symptoms, the available treatment options, the causes, etc鈥.聽 While research remains inconclusive regarding the cause of most delays, the controversial issues should be taken into consideration at some point during treatment by seeking medical attention for existing medical conditions.聽 The severity of medical impairment can range widely.聽 Often, more severe cases of developmental delay are accompanied by medical conditions that require medical intervention.聽 Less severe impairments may not require medical intervention but may be treated successfully with educational therapy only.聽 Medical conditions associated with delays may include immune system dysfunction, allergies, motor issues, seizures, impaired auditory processing…聽
5.聽 Learn your rights and the child鈥檚 rights.聽 Probably one of the most powerful tools available to you鈥.knowing what a child is legally entitled to.聽 This will enable you to be the child鈥檚 advocate and obtain the educational services that he/she needs!聽 Individual states have websites that outline special education law, provide options for ordering copies of the laws and provide links to other relevant sites.聽 Many advocacy websites are available online to support you and to provide friendly, easy to read resources and navigation tools to assist you in your advocacy.
6.聽 Obtaining a FUNCTIONAL education.聽 There is a whole world of educational products and teaching methods available for special education.聽 The MOST important skills necessary for children to acquire are functional skills.聽 Functional skills are the skills needed to allow a person to take part in the real world.聽 Education and learning is only useful when it can actually be used!聽 The degree to which a child is affected by a delay will affect the level of skills he or she is able to learn.聽 Regardless of the child鈥檚 ability, it still remains that all of the skills he learns, the skills MUST BE useful to the child and this requires them to be functional.
The methods of education, the goals of the education and the amount of teaching is usually decided by an IEP (Individualized Education Program) committee.聽 This committee can include any therapy provider, school psychologists, school administration, teachers and a parent.聽 Determining the appropriate education to be implemented requires an assessment of skills to be administered prior to making future education decisions.聽 Anyone involved in this decision process should be familiar with the assessment tools used and the associated functionality of the skills.
Treatment should always lead to acquisition of functional skills.聽 As an example, a child can be taught vocabulary or speech.聽 Teaching speech and language skills are a prerequisite to building communication.聽 For communication to be functional, the language should be language that is appropriate and is a part of the child鈥檚 everyday life.聽 It is appropriate for a 2 year old child to learn to ask for items he wants or needs like food or toys, or learn to wash his hands and use the bathroom.聽 Learning his ABC鈥檚 or counting may not be a priority at this time as it does not provide the child with a needed skill to communicate or perform his basic needs.聽 The goals of education should always consider the functionality of the skills.
Education treatment should follow a logical path based on the child鈥檚 needs.聽 The form of intervention should also cater to a child鈥檚 learning style.聽 If a child is not an auditory learner, obviously other sensory methods should be utilized.聽 Developmentally delayed children are often visual learners and not auditory learners.聽 Naturally, the methods used to teach should be based on visual input.聽
This is all very overwhelming when considered at once.聽 Breaking down the process and taking into consideration the obvious will allow for a logical path to be constructed.
Teaching and or caring for a child with special needs is an extremely difficult job.聽 Every day presents a new challenge.聽 The number of variables is endless.聽 The answers to education and treatment are not definitive.聽 There is no map to obtaining the perfect treatment and education plan.聽 BUT鈥..the reward of educating and treating a child and obtaining even the smallest successes is the greatest reward of all!聽 Every success is priceless because it has brought a change that will last for a child鈥檚 entire life!聽
Take one day at a time, one project at a time, one skill at a time 鈥 education and treatment is an evolving process that will never truly end but instead by refined.聽 Pathways will be found鈥︹ with patience and perseverance.聽 And remember鈥. Knowledge is power and Rome was not built in a day鈥.聽
For more information and articles, go to www.watchmelearn.com in the news section
Tags: autism, developmental delay, diagnosis, early intervention, education, functional education, pdd, Special education
April 22nd, 2010 at 11:21 pm
Phenomenal, thanks for posting!